Tag: Disabilities

Achieving Patient-Centred Care Or Floccinaucinihipilfication

Press Release – ASMS Thank you for the opportunity to address you again. As always my comments are personal observations, although in broad terms at least I believe they are consistent with the Associations view on the matters discussed. In this address I would like to …Achieving Patient-Centred Care Or Floccinaucinihipilfication by Ingenious Projectors of Perpetual Motion Believing in Their Own Infallibility [with a Little Help From ‘a Working Man’ And Einstein] Ian Powell Executive Director Association of Salaried Medical Specialists Thank you for the opportunity to address you again. As always my comments are personal observations, although in broad terms at least I believe they are consistent with the Association’s view on the matters discussed. In this address I would like to focus on the theme of whether patient-centred care is to be treated as a slogan or political sound bite, or something worth fighting for and achievable. I am advocating the latter through an interlinked focus on distributive clinical leadership and investment in the district health board specialist workforce. I discuss the performance of leadership in this address. By this I’m referring to those that make higher level decisions and definitely not to those many hard working and able operational managers whose contribution to the quality of our public health service is considerable. The Wisdom of ‘A Working Man’ Recently, as an indication of one of my...

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TPPA implications for PHARMAC raise serious concerns

Press Release – Walters PR The Multiple Sclerosis Society of New Zealand (MSNZ) is extremely concerned by the potential implications of the proposed Trans-Pacific Partnership Agreement for people with multiple sclerosis.TPPA implications for PHARMAC raise serious concerns for people with MS The Multiple Sclerosis Society of New Zealand (MSNZ) is extremely concerned by the potential implications of the proposed Trans-Pacific Partnership Agreement for people with multiple sclerosis. “The TPPA could undermine PHARMAC’s buying power and its right to choose the most appropriate and cost-effective drugs. It could also impede its ability to negotiate confidentially to gain the best price. This could have devastating consequences for people with MS and their families,” said MSNZ President Malcolm Rickerby. “Many people with MS are from low income households or are beneficiaries, due to an inability to work caused by their MS symptoms. Many of their partners and family members are also on a low wage or are carers. This makes them extremely vulnerable to any increases in prescription charges, which we see as a very likely consequence of the TPPA’s impact on PHARMAC.” Mr Rickerby said that if New Zealand agrees to a situation where pharmaceutical patents are extended from five to eight years, as speculated by some commentators, this will have a serious knock-on effect and constrain PHARMAC from funding new drugs in the future. “New Zealanders will pay higher costs...

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Supporting Copyright Reform

Press Release – Creative Commons Today Creative Commons released a policy statement expressing its support for copyright reform efforts around the world. Supporting Copyright Reform Timothy Vollmer, October 16th, 2013 Original: https://creativecommons.org/weblog/entry/39639 Today Creative Commons released a policy statement expressing its support for copyright reform efforts around the world. Creative Commons (CC) has enabled a new approach to copyright licensing over the last ten years. CC licenses facilitate novel social, educational, technological, and business practices, and support productive relationships around networked knowledge and culture. We are dedicated stewards of our licenses and tools, and we educate users, institutions, and policymakers about the positive benefits of adopting CC licenses. Our licenses will always provide voluntary options for creators who wish to share their material on more open terms than current copyright systems allow. But the CC vision—universal access to research and education and full participation in culture—will not be realized through licensing alone. Around the world, numerous national governments are reviewing or revising their copyright law. Some proposed revisions would broaden the scope of uses of copyrighted works permitted without the rightsholder’s permission. In response, it has been suggested that the very success of CC licenses means that copyright reform is unnecessary—that the licenses solve any problems for users that might otherwise exist. This is certainly not the case. CC licenses are a patch, not a fix, for the problems...

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RNZFB supports a fair deal on copyright

Press Release – Royal New Zealand Foundation for the Blind The Royal New Zealand Foundation of the Blind (RNZFB) supports the launch of the Fair Deal cause to highlight the Trans Pacific Partnership (TPP) and its implications on copyright.Royal New Zealand Foundation of the Blind Media advisory 13 July 2012 RNZFB supports a fair deal on copyright The Royal New Zealand Foundation of the Blind (RNZFB) supports the launch of the Fair Deal cause to highlight the Trans Pacific Partnership (TPP) and its implications on copyright. RNZFB Executive Director Access and Innovation, Neil Jarvis , says the TPP could negatively impact blind and partially sighted New Zealanders. “Those who have a print disability experience a famine when it comes to accessible information. Alarmingly, less than 5% of all published material is available in formats which are accessible to blind and partially sighted people*. “Current copyright legislation recognises the specific interests of print disabled people through copyright exemptions. The TPP could potentially put this hard-won right at risk,” Neil says. The TPP could affect the RNZFB and its 11,500 blind and partially sighted members in a variety of ways, including: • Risking the right to transcribe copyright material into alternate formats such as braille, large print, electronic text and audio, which are accessible to people with a print disability. • Temporary copies may become subject to rights owner control and...

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Govt should listen to diabetics’ concerns

Press Release – Democrats for Social Credit The government’s proposed changes for funding of glucose meters and strips for diabetes care is ill-advised and not in the best interests of patients, according to Democrats for Social Credit health spokesman, David Tranter.23 March 2012 Govt should listen to diabetics’ concerns The government’s proposed changes for funding of glucose meters and strips for diabetes care is ill-advised and not in the best interests of patients, according to Democrats for Social Credit health spokesman, David Tranter. “Given the long-standing provision of these materials and associated support services by the Roche Company, the DSC believes that this is another case of ‘if it’s not broken don’t fix it’. “If the changes go ahead then from 1 December this year Accu-Chek test strips will no longer be funded for approximately 120,000 users causing disruption for both the users and their health professionals – and apparently for no other reason than that government wishes to change to another supplier without providing convincing evidence for such a change. This will also affect the use of the Accu-Chek Combo insulin pump system as the test strips are an integral part of the system meaning that diabetics will have to change to another system from a different supplier” Mr. Tranter said. “While the DSC endorses much of Pharmac’s endeavours to provide effective medications at the best available price...

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